I've had my first official "setback" today. Until now, it seemed to be a clear cut from Caring Bridge where those posts were more related to my physical recovery and Husband Amused is more for my psychological recovery. But today I experienced a scare, directly related to my recovery as a patient of neurosurgery. So I am back to using this blog as a simple way to inform the people who care about me how I am doing with my recovery.
Last night I saw one act of Cosi Fan Tutte with Opera Grand Rapids. I did okay and went down to the pit to say hi to my friends (I guess I mean hug everyone because I was so happy). It was probably too much to do, but I was okay.
Today I went to the Public Museum, just to "do" another normal thing out. Again, I felt as if I were overdoing it slightly. I had lunch at the museum, and there I noticed a few things:
My left eye (originally the problem eye, which has been 100% cured for 10 days now), is now 30% diminished in its light and color saturation. Also, I have ringing in my ears again, and I started experiencing some headaches again.
I was driven home, got on the couch with some ice on my head, and dialed the neurosurgeon's emergency answering service. I spoke to the neurosurgeon on call (not my own, it is Saturday) and fully discussed my case and my current symptoms. To make a long story short, I am going to wait until Monday morning to go in first thing and get the once-over regarding those symptoms.
Now the good part starts.
After I was on the couch, I felt a little more tired. So I went up to bed (4pm I guess). I wrote a little bit, then got VERY tired. So I closed the laptop and put my head down with some ice on my head.
Sleep. Zzzzzzz. Wake up a little. WRONG. SOMETHING WRONG. TIIIIIIIIRRRRED. SLOOOOOOOW.
I tried to call MJ. "Aaaaaaahhhhhhhh . . ."
Nothing. I could have reached for my phone, but I forgot to bring it up with me. She was downstairs in the kitchen.
I tried to call for her again. "AaaaaaaaAAAAAHHHHH!"
Nothing. I felt lucid, not mentally slow. But my body was slow. If I had needed to jump out of bed to save my life, I probably could have, but for some reason I really, really didn't want to. I felt the need to remain extremely still, not moving once inch. Since I was lucid, I kept trying to call for MJ and, in the meantime, I tried to think what had happened. Overall, the past two days I have been "pushing it" regarding my recovery, trying to do some basic "normal things" outside of the house, but with supervision. (Never alone.) So I thought. What was I feeling? I COULD move if I really had to, but I didn't feel like it would be the right thing to do. What else was I feeling?
Fast heat beat. I was completely still, and had been for a while, completely relaxed. So what was happening?
Now, I love MJ. I love her with all my heart, and every day is like the best honeymoon ever (yeah, baby!!), filled with an explosion of love and tenderness, excitement and intrigue . . . but even MJ could not conjure this kind of urgency in my blood. Something was just plain wrong.
Blood pressure. [Pardon me for saying this, but . . .] Ess-Aitch-Eye-Tee.
My blood pressure HAS been a huge problem recently. Even WITH my current meds, when I get totally stressed it can read 170/115, way too high, and my docs know and we are working on it.
But I forgot—totally forgot this morning with all the excitement last night and today—to take my three different blood pressure pills. (Also, the first time I had the "spiral" episode in my head - see "The Head Crash" blog - I had also forgotten to take them too.)
I called to MJ, "AAAAAAAHHHHHHHH!"
Nothing. I was not in mortal danger, and on some level I knew this for sure. But I conserved energy, staying very relaxed, and kept calling.
She came in. To make a long story short, she saw my condition (which I guess looked horrible), called work to cancel her appearance tonight, then with my blood pressure meds and a lot of ice, I was okay in about two hours, but with one heck of a "hangover"-type headache, which some pain pills took care of.
MJ says I was talking "baby-talk" to her when she came in, speaking slow, softly, and sort of slurring my (carefully chosen and few) words as I remained exactly still. We almost called an ambulance, etc., but once my blood pressure came down (we did not measure it, but I could feel it) my speech got better, more wordy and "regular conversational" and I felt better.
My vision, ringing in the ears, and headaches are still hanging around tonight, but I feel okay if I simply rest.
So I will stop typing and will fill everyone in tomorrow.